Fevers

Here is a moment when Tylenol kicks in and Symi's Fever is going down. She was even willing to eat something! Both of them were too cute to resist.

Ben insisted on wearing jammies because Symi was. Constantly. They both wanted a snack and to eat in my room. I agreed, on one condition. That they sit against the wall and can't move until their food was gone. They agreed and you can tell my floor was very messy.

I have been trying to get her to nap "normally" for days! She doesn't want to. So as a result, the last few days I keep catching her asleep on our couch.
Too bad the naps only last 30 mins. She's exhausted.

Here is another "Happy Moment" that only a few minutes later was followed by tears.
At least she's cute! I can hang onto those precious moments when her personality comes shining through!

Crashed again.

This was a fever of 103.8. Her cheeks were so rosy and she was just burning up! She wants clothes on all the time, and constantly wants to be in a blanket. Both don't help fevers go down.
At least she'll tolerate a cool cloth to her forehead and back. Help keep the fevers at bay, but she cries the whole time, while I'm wiping her down.

Here's the story. Just after Thanksgiving Symi started to get fevers. At first the Dr thought that she had Strep. She never tested positive for the test, but had all the other symptoms. So he put her on some antibiotics to help. They did help for a few days. But then she was back to the fevers again. When she has fevers, she refused to eat and drink. (Note: She did this last year and we were sent to Primary Children Medical Center.) The Dr kept thinking she was just fighting a virus. I wasn't so sure. It all seemed like a daja vu. We ended up in the InstaCare just after Christmas. She had spiked to a fever of just under 104 and getting higher. With Tylenol she wasn't going down. They tested her for any kind of infection: Strep, Ear, Sinus, and even Bladder. Nothing. So they told us the same thing. She's got a virus. No other symptoms, just a fever. We followed up with the Dr a week later. He was concerned and immediately sent us to the Lab for a multitude of blood test. Checking for blood disorders, cancer screenings, and to see if her blood was infected. We waited for a week. Results were nothing.

She still had fevers. She was also becoming dehydrated and the Dr debated on putting her in the hospital for a while on IV treatment and monitoring of her fevers to get a record. I didn't agree. He let us go home. I've always wondered if Symi really had "food allergies". She was diagnosed too quickly in my eyes. And never showed any "normal symptoms" to the food allergies. But the formula helped her to grow, gain weight, and develop. We know how crucial that is in the first year. I'm grateful to have had it and that it worked for her.

Now what? Our Dr want's us to monitor her fevers still. They seem to cycle in and out. Since she was born, but they always thought something else. I've always thought differently, but I've listened and patiently done what I've been told. Just always felt like it wasn't right. Like a big bandaid was being put over the "real" problem. Our Dr also sent us to an infections Disease Specialist at Primary Children. They are booked until Late April and sent us to Rheumatology. I've left a message and they will get in touch with us shortly.

So why is this post so long and just growing longer? I'm babbling. Frustrated and confused. And just wanting relief for my daughter. I just feel like life for her can be better than this. That there is more about it that we just don't know. I've been praying as a Mother what to do. What more can I do? Where do I need to go to help her? I feel like this is right. That maybe each thing that's happened in the past has slowly brought us to where we are today.

Ben has been so patient through all of this. Kindly trying to give her kisses to help her feel better. Praying for her. Sharing all his toys while she screams and throws a fit, because she just doesn't feel good. Holding her hand while the Dr exams her for the millionth time. Waiting patiently, with knots in his stomach, while Mommy and Symi step into the next room for blood work. When we came out he was in tears asking if she was going to be alright? Then wanting to just hold her when he saw her again.

Why does my 4 year old have to be so grown up?

We will keep you posted.