Update

Symi has been having a pretty rough day. And according to the Dr's tomorrow is going to be really tough. But hopefully we'll start to see some results and answers. I guess I'm just tired of sitting and waiting. So it's nice for me to see them really start to take some action.

Today she was started on a feeding tube that was place through her nose into her stomach. They started the feedings and immediantly she start to scream. Not fun at all. She was very upset for almost 2 hours after she ate too. Very fussy today and could not get comfortable. Same results happened when they tried to feed her a second time today.

I needed a break. Found a quiet hall to myself and bawled. I was starting to feel better. When a woman approached me and informed me that we were neighbors. She was right across the hallway with her daughter. She asked if we were alright because it seemed like we were sure having a rough day with Symi. I started to bawl again. I was thinking today that no one in this hospital seems to really care or take as much concern about Symi as Dane and I have been. So after we spoke for a moment. I felt much better. She kindly asked if she could give me a hug. Here we were instructed not to touch each other. As it can cause disease and sickness to quickly spread. I sigh really big and said yes. Then started to bawl all over again. She said," You know sometimes it's really tough in here. And all you need is someone to wrap their arms around you." She was so right.

Tomorrow they want to start a more aggressive approach to this. They were talking about doing an Endoscopy on her. We were doing this last year with Ben so it wasn't anything new to us. Other than she's the age where she cannot be awake. She has to be put under. That's so hard to hear. I don't know if they really will do it. We've been hearing for days of different things that they want to do and nothing has happened according to "the plan". So everyday is an annoying waiting game. Now after 3 days they said," We know that your daughter is really having a hard time and that something more serious is going on." Really! Are you kidding me?! I've been telling you people this ever since we walking into the ER on Christmas Eve and you're now telling me that you've finally hear what I've said!! Wow. Someone needs to see an ear Dr. Anyways, I've been super frustrated and now and seeing a light at the end of a long tunnel.

I don't know how long we will be here for. They said that they won't release her until she can eat on her own, maitain her weight, and keep herself hydrated enough that she doesn't require an IV. So I'm sure we'll be here for a long while.