Today

Well today started off looking rough and bad.

Last night Symi struggled through the feeding through the tube. She was sleeping pretty good though. Really fussy and upset. It took them a few hours to console her enough to go back to sleep.

This morning we started off with a Swallow study. They x-rayed her while they were having her swallow barium. She LOVED the barium and kept drinking and drinking and wanting MORE!! After we came back she accepted a 3 oz bottle and then crashed and slept hard for a few hours. We haven't seen either of these 2 things since we've arrived! Huge steps! After the swallow study was done we talked with a GI specialist. She changed up the meds a bit and put her on a specially made formula from the pharmacy. Miracle #1 she ate it and has been eating it ever since this afternoon!!!! We were able to take her off her IV fluid too and hope that if she can continue to eat on her own we will go home soon.

Today had its rough moments. But so many Big Steps today that we didn't know when we'd see them! We are so happy and grateful to all those who fasted and prayed for our little Symi and family yesterday!! I cannot thank you enough. We are seeing the blessings and feeling the strength as parents. Thank you.

So we're hoping for a wonderful day tomorrow! I'll try to keep you posted!